Who is the MDFXRG?
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We are The Maryland Fragile X Resource Group. A non-profit organization that provides support and resources to families affected by Fragile X Syndrome and it's associated disorders in Maryland.
Fragile X Syndrome and Fragile X associated disorders are a group of genetic conditions that can affect individuals and thier families in many ways.
All fragile X-associated disorders are caused by changes in the same gene, the fragile X mental retardation 1 (FMR1) gene. Fragile X-associated disorders include: Fragile X syndrome, Fragile X-associated primary ovarian insufficiency (FXPOI), Fragile X-associated tremor/ataxia syndrome (FXTAS).
"What lies behind us and what lies before us are tiny matters compared to what lies within us."
Ralph Waldo Emerson
The Maryland Fragile X Resource Group organizes various events that support our families through-out the year. Such events include; monthly support group meetings, speaker programs featuring experts on treatments for Fragile X Syndrome and its associated disorders and family meet-ups.
Next Upcoming Event
Walk this Way for Fragile X
at Seneca Creek State Park Gaithersburg, MD
on Saturday, October 11, 2014
Beginning at 8am
The information presented on this website is general and not a substitute for professional advice. The information is current at the time it was published. The Maryland Fragile X Resource Group (MDFXRG) regularly reviews this information. MFXRG expressly disclaims any and all liability for any loss or damage (whether direct, indirect or consequential, including in negligence) suffered or incurred by any person relying on this information including as a result of any omission, inadequacy, insufficiency or inaccuracy in its content.
Welcome to the Maryland Fragile X Resource Group Website!